| Dear
patients and families,
This section of the web
site is specifically for you. We want to provide this place for
you to tell your stories, share your opinions and ideas, communicate
with each other, discover new resources, and ask questions you might
not have had a chance to ask at your last hospital visit. We will
need your input for these pages.
Sharing
Stories: We invite patients (also parents, grandparents,
and siblings) to share their personal stories and experiences in
dealing with childhood cancer. One person's insights, feelings,
and courage can be helpful to someone else going through a similar
experience. Check out this section to see if there is something
helpful for you or to discover that you may have something to contribute,
too.
Ask
the Experts: This is your chance to ask questions for the
"experts" on our staff to answer. We will look at the questions
and select the appropriate staff member to provide an answer. Remember
that these will be general questions and answers - not specifically
related to any personal diagnosis. For example, questions might
be about nutrition during radiation therapy or chemotherapy, about
side effects of treatment and how to cope, how to cope with anxiety,
or why things are done a certain way. You may direct your question
to our medical staff, psychosocial team, dietitian, or office staff.
Book
Reviews and Lists: Our resident bookworm will present books
which parents, patients, or staff have read and reviewed. We welcome
ideas and reviews from you for this section. We also have listed
books(and some videos) which you might find helpful.
Late
Effects of Therapy for Cancer: Read articles and answer
surveys regarding the late effects of therapy for cancer.
To send us your stories,
questions, book reviews, or suggestions, bring them to the clinic
with you and leave them for the web editor at the desk, or:
Email the editor at:
hauff_m@kids.wustl.edu
| Fax: |
314-454-2780 |
| Mail: |
Marnie Hauff
Division of Hematology/Oncology - 9 South
St. Louis Children's Hospital
One Children's Pl.
St. Louis, MO 63110 |
|