Web sites worth checking about pediatric cancer and other blood diseases

Linking to other web sites is one way we can help you to create a network of resources. There are many web sites worth checking out. Following is a sampling of them; we will add to this list regularly to create a complete menu for you. Please keep in mind that web addresses change frequently; we will try to keep as up-to-date as possible.

American Cancer Society
www.cancer.org
This is a place to find information about childhood cancers.

Aplastic Anemia and MDS
www.aplastic.org
This organization offers information about aplastic anemia and myelodsyplastic syndromes.

Blood & Marrow Transplant Newsletter
www.bmtnews.org
Provides a newsletter and information about blood and marrow transplants.

The Brain Tumor Society
www.tbts.org
This site has many resources for patients, family, survivors, and professionals.

Brave Kids
www.bravekids.org
This site provides medical information, a directory of health care specialists, and a community chat room.

Cancervive
www.cancervive.org
This is a national organization which provides books, a newsletter, and videos.

CancerWEB Online Medical Dictionary
cancerweb.ncl.ac.uk/omd
Medical and support information.

Candlelighters Childhood Cancer Foundation
www.candlelighters.org
This site has a calendar of events, a message board, advocacy issues, and provides a quarterly newsletter plus a number of other publications.

Captain Chemo Web Site
www.royalmarsden.org.uk/captchemo/index.asp
Interactive adventures of Captain Chemo teaching children about childhood cancer.

The Childhood Brain Tumor Foundation
www.childhoodbraintumor.org
Advocacy for awareness about children with cancer.

Childhood Leukemia Center
www.patientcenters.com
Created for parents and others caring for a child with cancer.

Children's Cancer Web
www.cancerindex.org/ccw
Provides an overview of childhood cancer web pages with links to the sites.

Children's Neuroblastoma Cancer Foundation
www.cncf-childcancer.org
Provides information about resources for financial help, travel, wishes, and links to online support groups.

Children's Oncology Group (COG)
www.childrensoncologygroup.org
Information on this site about clinical trials. Long-term follow-up guidelines are available on this site.

The Children's Cause
www.childrenscause.org
This is the site of a consumer-based, independent advocacy voice focusing on national policies related to services for pediatric cancer survivors, research, and health care.

Fanconi Anemia
www.fanconi.org
Information about the publications from this organization; educational support for families.

4YOUth List
http://listserv.acor.org/archives/4youth.html
This is a listserv for young people (12-21) with cancer, either on treatment or off. It is an online support mailing list for young people.

HIS KIDS
www.HIS-KIDS.org
Support through camp and fun for children with cancer.

I'm Too Young for This
www.imtooyoungforthis.org
This is a resource for young adults that includes a directory of cancer support services.

Kids Cancer Network
www.kidscancernetwork.org
Producer of FUNLETTER. Provides a source of encouragement and fun for children with cancer.

Leukemia and Lymphoma Society of America, Inc.
www.leukemia.org
Provides free booklets and videos.

Livestrong
www.livestrong.org
This is a resource for cancer survivors provided by the Lance Armstrong Foundation. Topics are presented about physical, emotional, and practical issues of survivors.

Lymphoma Information Network
www.lymphomainfo.net
A guide to lymphoma, books, glossary, and support

Locks of Love
www.locksoflove.org
Provide hairpieces to children under 18. Information about donating hair.

Make-A-Wish Foundation
www.wish.org
Directory available to your local Make-a-Wish chapter. How to make a wish and application form available online.

National Brain Tumor Foundation
www.braintumor.org
Provides a newsletter and helpful publications.

National Cancer Institute
http://cancernet.nci.nih.gov/occdocs/kidshome.html
Cancer Information Service provides many informational booklets. Provides a special section called Kids' Home At NCI which deals with pediatric oncology issues.

National Childhood Cancer Foundation
www.curesearch.org
This site includes information about childhood cancer, research, clinical trials, raising awareness, and much more.

National Children's Cancer Society
www.children-cancer.com
Financial assistance information, advocacy, education, and prevention programs.

National Coalition for Cancer Survivorship
www.canceradvocacy.org
This is a patient-led advocacy organization with information about programs and resources for cancer survivors.

Neuroblastoma Children's Cancer Society
www.neuroblastomacancer.org
Dedicated support, research, fund raising, and advocacy for children and families.

The Never-Ending Squirrel Tale
www.squirreltales.com
Very good site for parents of children with cancer with a lot of information and input from site visitors.

OncoChat
http://www.oncochat.org/
This is an online peer support site for cancer survivors, family and friends.

Osteosarcoma Online
iucc.iu.edu/osteosarcoma
This site presents information for patients, family members, and friends about osteosarcoma; it also gives news about advocacy and research.

Outlook - Life Beyond Childhood Cancer
www.outlook-life.org
Provides information about issues involving late effects, insurance, and job opportunities.

Pediatric Brain Tumor Foundation of the United States
www.pbtfus.org
Information on family programs, news about activities to promote awareness, and funds for research.

Pediatric Oncology Resource Center
www.acor.org/ped-onc/index.html
Wonderful site for anyone touched by childhood cancer: parents, children, school staff, family, friends.

Planet Cancer
www.planetcancer.org
This site is "a community of young adults with cancer" where you sign in and then have access to a chat room, real world advice, and links.

The Sickle Cell Information Center
www.emory.edu/peds/sickle
Very educational site with information for parents, teacher, and employers.

Starbright
www.starlight.org
Visit the site that lets you see the creative videos and CD-ROMS for seriously ill children.

Steps for Living
stepsforliving.org
This site is about the power of arts to raise awareness about survivorship. It includes newsletters and survivorship issues.

Teens Living with Cancer
www.teenslivingwithcancer.org
Available in both English and Spanish the information on this site includes stories, connecting with others, and general information.

2bMe
www.2bme.org
This is a site for teens with cancer. It offers information about appearance, nutrition, and social issues.

Ulman Cancer Fund for Young Adults
www.ulmanfund.org
Information about scholarship awards for college students surviving cancer and needing financial aid.

Wigs for Kids
www.wigsforkids.org
Provides hair replacements for children. Guidelines for donating hair.